Tennessee Commission on Aging and Disability
Mike Hann, Executive Director
Alzheimer's Book Titles and Other Publications
Alzheimer's: A Caregiver's Guide and Sourcebookby Howard Gruetzner New York, NY: John Wiley & Sons, Inc., 1992. Guide to a better understanding of the physiological and psychological characteristics of the disease, of the progressive stages of the disease, and of ways to cope with the demands of caring for an Alzheimer's patient. |
Alzheimer's Disease: A Handbook for Caregiversby Ronald C. Hamdy St. Louis, MO: Mosby-Year Book, Inc., 1990. Contains information about the effects of Alzheimer's disease on the patient's day-to-day life. Offers a detailed description of the stages of the disease, options for treatment, and effects of other mental and physical characteristics on expression of Alzheimer's disease. Also, suggestions for approaching nutrition, sleep habits and therapy. |
Caring for an Alzheimer's Patient: A Family GuideAmerican Health Assistance Foundation. 1994, revised 1998. This 34-page booklet discusses the issues involved in caring for an Alzheimer's patient, including family involvement, tips for creating a safe home environment, and support groups and respite care options for caregivers of Alzheimer's patients. |
Coping With Alzheimer'sby Rose Oliver, Ph.D. and Frances A. Bock, Ph.D. New York, NY: Dodd, Mead & Co., 1987. This book focuses on the emotional aspects of caregiving: denial, anger, anxiety, stress-and how to cope with them. Using Rational Emotive Therapy (RET), a theory of human emotions and psychotherapy, the author shows the caregiver how to identify and change dysfunctional emotional and behavioral responses to caring for an Alzheimer's patient. It is designed to help caregivers accept a loved one's Alzheimer's disease and maximize the quality of care while minimizing the emotional cost. |
How to Care for Your Parents: A Handbook for Adult Childrenby Nora Jean Levin Harbor, WA: Storm King Press, 1993. This handbook provides definitions, facts, and useful tips concerning choices and support services. |
Managing Grief & Bereavementby Edna L. Ballard, ACSW Duke Family Support Program, 1990. A guide for families and professionals caring for memory-impaired adults and other chronically ill persons, the booklet includes dealing with grief experienced before the patient's death as well as following the death of the patient. Call 1-919-660-7510 to order. |
The 36-Hour Day. A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss Later in Life(revised edition) by Nancy L. Mace, M.A. and Peter V Rabins, M.D., M.PH. Baltimore, MD: Johns Hopkins University Press, 1991. A comprehensive book on caring for an Alzheimer's disease patient. |
There's Still a Person in There: The Complete Guide to Treating and Coping with Alzheimer'sby Michael Castleman, Dolores Gallagher-Thompson, and Matthew Naythons New York, NY: The Putnam Publishing Group, 2000. A comprensive guide to the care and possible prevention of Alzheimer's disease. Written for cargivers and anyone else who has been touched by Alzheimer's disease. |
When Your Loved One Has Alzheimer's: A Caregiver's Guideby David L. Carroll New York, NY: Harper and Row, 1989. Covers everything from an explanation of Alzheimer's disease to diagnosis to the needs of the caregiver. |
Share the Care:by Caosella, Cappy, and Shiela Warnock. Fireside Books/Simon and Schuster, 1995. Practical and Inspirational guide to setting up support groups |
Alzheimer's Disease: Legal and Financial Facts You Should KnowAmerican Health Assistance Foundation, 1994, revised 1998. This 18-page booklet gives an overview of the legal and financial issues Alzheimer's patients and their families will face as the disease progresses. The booklet offers information on Medicare, Medicaid, supplementary insurance and other topics as they pertain to Alzheimer's patients. To order, call 1-800-437-2423. |
Before You Buy: A Guide to Long-Term Care InsuranceWashington, D.C.: American Association of Retired Persons. 1994. This brochure is designed to help the consumer understand how the costs of long-term care are paid, the benefits and limitations of Medicaid's coverage of long-term care, and what private long-term care insurance options exist. It answers questions about who needs long-term care insurance and highlights features of policies. It also includes worksheets that help consumers assess their need for long-term care insurance, and determine what services are available to them at what cost. Available free of charge by calling (202) 434-2277 in the Washington, D.C. metropolitan area, or 1-800-424-3410 outside the Washington, D.C. metropolitan area. |
Consumer's Guide to Long-Term Care InsuranceWashington, D.C.: Health Insurance Association of America. 1989. This booklet provides information for the general public on selecting long-term care insurance. It defines long-term care, gives statistics on the chances of needing long-term care, and lists cost estimates. A glossary and a checklist for the comparison of policies are included. To order call (202) 824-1844. Single copies are free. |
Guide to Health Insurance for People with MedicareBaltimore, MD: Health Care Financing Administration Publications, 1999 Other publications include The Medicare Handbook, Medicare and You, and Medicare and Medicaid. To order call (410) 786-7843. |
Making Medicare ChoicesPublication D-16747 This booklet provides information about comparing Medicare options, including traditional Medicare, managed care, and other health plans, to help in your decision process. |
Medicare BasicsPublication D-16812 This booklet provides basic information about Medicare, and will help you understand what services you're entitled to receive. |
Selecting Medicare Supplemental InsurancePublication D-16183 This booklet is designed for people who have traditional Medicare and want to learn more and make educated decisions about how to cover their health care costs with Medigap insurance. |
Your Medicare RightsThis booklet provides information to help you understand your rights as a Medicare recipient to that you can obtain the health care that you need. |
Alzheimer's Disease: The ABC's of DiagnosisAmerican Health Assistance Foundation, 1994. This 18-page booklet outlines the process and problems involved in making a diagnosis of probable Alzheimer's disease (the disease cannot be diagnosed with 100% accuracy until an autopsy is performed). It also discusses what to do once a diagnosis of Alzheimer's disease has been made. To order call 1-800-437-2423. |
Alzheimer's Diseaseby Elaine Landau, 1996. |
Alzheimer's Disease: The Silent Epidemicby Julia Frank, 1985. |
A Beautiful Pearlby Nancy Whitelaw, Whitman, 1991. |
Facts About Alzheimer's Diseaseby Laurie Beckelman, 1990. |
Fading Memories: An Adolescent's Guide to Alzheimer's DiseaseAmerican Health Assistance Foundation, 1997. This book was written by and for adolescents to help cope with having a loved one with Alzheimer's. To order, call 1-800-437-2423. |
Through Tara's Eye's: Helping Children Cope with Alzheimer's DiseaseAmerican Health Assistance Foundation, 1995. This 37-page, illustrated book was created to aid in explaining Alzheimer's disease to elementary school children. The story follows the changing relationship between a young girl and her grandmother, who has Alzheimer's disease. At the end of the book there are a variety of activities to be completed interactively with an adult. The book should be read to children by a parent, teacher, guidance counselor or other adult. To order, call 1-800-437-2423. |
Grandma's Soupby Nancy Faye Karkowsky, 1989. |
Understanding Alzheimer's DiseaseAmerican Health Assistance Foundation. This six-panel brochure outlines the general stages of Alzheimer's disease and answers some of the most commonly asked questions about the disease. To order, call 1-800-437-2423. |
Helping Yourself Help Othersby Rosalynn Carter. Random House, 1994. Many personal stories explain emotions, medical and family issues. Provides resource listings and bibliography. |
Honest Answers for the Recently Diagnosed Alzheimer PatientAmerican Health Assistance Foundation, 1998. This 43-page booklet clearly answers questions that a recently diagnosed Alzheimer's patient would have. Issues concerning the causes and stages of the disease are discussed, as well as treatment options. There are suggestions for how to tell your family about your illness and discussions about the primary caregiver, employment issues, and legal assistance. In addition, there are helpful sections concerning support groups, important web sites, helpful books, and organizations to contact for assistance. To order, call 1-800-437-2423. |
The Loss of Self(Revised Edition) by Donna Cohen, Ph.D. and Carl Eisdorfer, Ph.D., M.D. New York: The New American Library, 1994. Comprehensive book that covers obtaining accurate diagnosis, drugs proven to help in managing Alzheimer's, how to deal with legal and financial issues, choosing a nursing home, and emotional needs of families and patients. Gives examples of how families and patients have coped with Alzheimer's disease. |
Loosing a Million Minds: Confronting the Tragedy of Alzheimer's Disease and Other DementiasCongressional Summary. April 1987. United States Congress - Office of Technology Assessment. Covers everything from diagnosis, treatment, long-term care, finances, research policy, patient assessment and eligibility for services and programs and services that specialize in care of Alzheimer's disease. |
The Vanishing Mind: A Practical Guide to Alzheimer's Disease and Other Dementiasby Leonard Heston, 1991. Provides answers to questions about the difference between dementia and normal aging, how dementia is diagnosed, how other elderly afflictions interact with dementia, and how to manage and treat dementia. The book helps the caregiver make realistic plans for proper care, including driving, medical coverage, legal competence and supervision. The book also gives clear scientific descriptions of dementia-related disorders. |
The Progress Report on Alzheimer's DiseaseNational Institute of Health, National Institute on Aging. These NIH annual reports summarize recent research and developments in the study of Alzheimer's disease. Published annually. Available from the Alzheimer's Disease Education and Referral (ADEAR) Center, P.0. Box 8250, Silver Spring, MD 20907-8250. 1-800-438-4380. For the most up-to-date research findings, check their web site at http://www.alzheimers.org/adear |
For Sasha, With Love: An Alzheimer's Crusade, The Anne Bashkiroff Storyby Gail Holland. 1985. Reveals the cost of Alzheimer's disease in emotional terms, and the unique problem of a married Alzheimer's victim and the journey of the well spouse. Anne Bashkiroff, who now heads Family Survival Project, offers special support and hope to families and friends of all brain-damaged victims. |
Beat the Nursing Home Trapby J. Matthews Nob Press, Berkeley, CA 1997. To order call (415) 549-1976 or 1-800-992-6656. This guide provides practical information about understanding, choosing and financing long-term care for the elderly. It describes the options available for long-term care, and includes a special warning about nursing home insurance policies - many often leave patients with Alzheimer's disease without coverage, even when the policy claims it specifically covers the disease. |
Guide to Choosing a Nursing HomeU.S. Department of Health & Human Services/Health Care Financing Administration, 1997. Write to them at 6325 Security Blvd., Baltimore, MD 21207. To obtain a copy, write and request publication No. HCFA-02 1 74. Free of charge. |
Long-Term Care: A Dollar and Sense Guideby S.E. Polniaszek and D. Lewis Washington, D.C.: United Seniors Health Cooperative, 1991. This guide helps consumers understand financing options in long-term care and make decisions that best meet their needs. The first section explores ways of planning for long-term care in the home. The second section is about planning for nursing home care. A table showing 1991 changes in Medicare coverage is also included. To order, call (202) 393-6222 or fax (202) 783-0588. |
Nursing Home Life: A Guide for Residents and FamiliesAmerican Association of Retired Persons, 1991. Available from AARP Fulfillment. 601 E Street, NW, Washington, D.C. 20049. Publication #D13063. Single copy free. Provides information to consumers as they search for a nursing home, arrange for admission, and adjust to life in the home after admission. Making the decision to seek nursing home care and selecting a home can be a difficult, often emotional, process. The guide discusses how to assess individual needs in choosing a nursing home, the services and staff at a nursing home, and issues of poor care and abuse. An abridged Spanish version of this guide is also available. |
The Hardest Choice: Selecting a Nursing Home for an Alzheimer's PatientAmerican Health Assistance Foundation, 1994. This 21-page booklet gives family members of Alzheimer's patients an initial overview of the process and issues to consider when choosing a nursing home for their loved one. To order, call 1-800- 437-2423 |
Tips on Long-Term Nursing Home CareArlington, VA: Council of Better Business Bureaus, Inc., 1989. Offers tips to people who help relatives or friends make the decision to enter a nursing home. To order, call (703) 276-0100. |
The Aging Parent HandbookVirginia Schomp. Mass Market Paperbacks, 1997. |
How to Care for Aging Parents. Virginia Morris. New York: Workman, 1996 |
How to Care for Your ParentsNora Jean Levin. New York: W. W. Norton, 1997 |
Long Distance CaregivingAngela Heath. American Source Books, 1991. Defines caregiving issues, tips for traveling, finding help in the aging network, legal and financial paperwork, care plans, relocation. |
| Book list sources -- click to visit The American Health Assurance |
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